The Clinical Trials Office - Links/Resources

The following list of Web sites provides information for patients who are considering their treatment options, including clinical trials, as well as general medical information for patients and their families.

Please note! The Clinical Trials Office at Columbia University Medical Center provides this list for informational purposes, and is not responsible for the content provided on the Web sites linked below.

	Clinical Trials Listings: General

ClinicalTrials.gov Registry of clinical trials of experimental treatments for serious and life-threatening diseases or conditions.
CenterWatch Clinical Trials Listing Service
CancerNet / National Cancer Institute

•	Search for Clinical Trials
•	Clinical Trials Database User's Guide
•	PDQ (Physician Data Query) Database containing the latest information on cancer treatment, screening, prevention, genetics, and supportive care, plus clinical trials

Acurian
Clinical Trials Notification Services Allows patients to sign-up for clinical trial updates on CenterWatch

	Clinical Trials Listings: Condition Specific

Eastern Cooperative Oncology Group: provides clinical trials for adult cancers
IBD Clinical Trials Registry (e.g. Crohn's disease, ulcerative colitis) (via CCFA)
Clinical Trials for Brain Tumors (UMDNJ)
National Surgical Adjuvant Breast and Bowel Project

	Information on Participation & Good Clinical Practices

Food and Drug Administration: Good Clinical Practices in FDA-Regulated Clinical Trials
NIH Clinical Center: provides information for patients about participating in clinical trials
General Accounting Office Report to Congress: NIH Clinical Trials - Various Factors Affect Patient Participation

	Patient Resources: General

Center for Disease Control and Prevention
Discovery Health Channel
healthfinder® : resource for finding government and nonprofit health and human services information on the Internet
HealthWeb.org: several health sciences libraries provide online educational resources
MediLexicon: online listing of pharmaceutical acronyms and abbreviations & their meanings
MEDLINEplus
MedWeb
National Institutes of Health (NIH)
National Library of Medicine : online library of medical books, journals, and reports
NOAH: New York Online Access to Health: consumer health information in English & Spanish

	Patient Resources: Condition Specific

Cancer (Oncology)
American Cancer Society Bonetumor.org
Breast Cancer Answers
BioImmune.com
Cancer Treatment Research Foundation (CTRF)
Colorectal Cancer Network
International Myeloma Foundation
The Leukemia and Lymphoma Society
Lung Cancer Online
Melanoma International Foundation
National Cervical Cancer Coalition Home Page
National Children's Cancer Society
OncoLink Cancer News
The Sarcoma Foundation of America
Support for People with Oral and Head and Neck Cancer (SPOHNC)
The Walter Payton Cancer Fund

Cardiology/Vascular Diseases
American Heart Association
American Heart Association Women's Web Site

Dermatology / Plastic Surgery
The American Academy of Dermatology
American Academy of Facial, Plastic, and Reconstructive Surgery
Lupus Foundation of America
The National Eczema Society
National Psoriasis Foundation
National Rosacea Society

Endocrinology
The American Diabetes Association
The Endocrine Society
Juvenile Diabetes Research Foundation International
National Adrenal Diseases Foundation
Polycystic Ovarian Syndrome Association, Inc

Eye Conditions / Ophthalmology
The Glaucoma Foundation
Glaucoma Research Foundation
American Macular Degeneration Foundation

Gastroenterology
American Liver Foundation
Crohn's and Colitis Foundation of America
Hepatits.org
Hepatitis B Coalition
Hepatitis B Foundation
The North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN)
Pancreas.org

Hematology / Blood Disorders
The Anemia Institute
Aplastic Anemia & MDS International Foundation, Inc.
International Myeloma Foundation
The Leukemia and Lymphoma Society

HIV / AIDS
AIDS.ORG
HIV InSite

Urology
Kidney & Urology Foundation of America

Neurology
Alzheimer's Association
Autism Society of America
International MS Support Foundation
National Multiple Sclerosis Society
National Neurofibromatosis Foundation, Inc
National Parkinson Foundation, Inc
National Stroke Association

Obstetrics / Gynecology
TheBreastCareSite.com
Endometriosis Association
The Endometriosis Research Center (ERC)
The North American Menopause Society
Obgyn.net

Pediatrics/Neonatology
Down Syndrome - Understanding the Gift of Life (Support groups, events, conferences and medical articles)
March of Dimes Home Page
National Institute of Child Health and Human Development - Turner Syndrome
The Turner Syndrome Society (TSS) of the United States

Psychiatry / Psychology
The Arc: national organization for people with mental retardation and related disabilities and their families
Children and Adults with ADD
NAMI (National Alliance for the Mentally Ill)
National Mental Health Information Center
The National Sleep Foundation

Pulmonary/Respiratory Diseases
The American Lung Association
Allergy, Asthma and Immunology Online
American Academy of Allergy, Asthma & Immunology
The Coalition for Pulmonary Fibrosis
National Emphysema Foundation
National Emphysema Treatment Trial
Pulmonary Fibrosis Foundation

Rheumatology
Arthritis Foundation
Arthritis Research Institute of America, Inc
The Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) Association of America
Lupus Foundation of America
Spondylitis Association of America